Friday 29 September

Empowering patients: Do you hear me?

08.30-10.00 Rotterdam Hall 1

Chairs: Sammy Ainsworth (UK), Marlies Allewijn (NL)

Speakers:

Maud Wessels (NL) - “Your experience, my future”

Wendy Olsder (NL), Casper Schoemaker (NL) - "Combining expierence an scientific expertise"

Lynette Bortey (UK) "I didn’t know my own strength"

Janet McDonagh (UK) "Adolescent care: time for a rethink?"

Saturday 30 September 2023

Fatigue

8.30-10.00 Mees 2

Chair: Jeanne Linneweever (NL)

Speakers:

Sanne Nijhof (NL) - "What is chronic fatigue and what is the difference"

Rashmi Sinha (US)

Kari Cupp (US)

ENCA Round table session (open to ENCA Member Organisations only)

10.30-12.00 Mees 2

The impact of diseases on education

15.50-17.20 Mees 1

Chair: Saskya Angevare (NL)

Speakers:

Rebecca Beesley (UK) - "Enabling and empowering children with RMD’s in education"

Luc Angevare (NL) - "Inflammation to inspiration, Navigation school with an autoinflammatory disease"

Libby Newsome (UK) - "Finding the balance: A teacher’s perspective."

Patient and Public Involvement in Paediatric Research

17.30-18.30 Mees 2

Chair: Michael Beresford (UK)

Speakers:

Sammy Ainsworth (UK) - "Involving Young People and families in the Design of Research. An Example from the university of Liverpool"

Karijn Aussems (NL) - "Research agenda setting with children with JIA, addressing the needs of children in Research practice"

Maaike Hoogewegen (NL), Bas (NL) "Your experience, My future; Children and young people with JIA exchange perspectives"

Sunday 1 October 2023

Young People & Mental Health

8.30-10.00 Rotterdam Hall 2

Chair: Anita van de Louw (NL)

Speakers:

Polly Livermore (UK) - "The mental health impact of JIA"

Richard Beesley (UK) - "Mental health and JIA: Families and how to support them"

Gabi Erbis (DE) - "Supporting the psychological and social impacts during transition to adult clinics"