Who are ENCA?
ENCA is the global network for children with arthritis and autoinflammatory conditions. We are led for and by parents and young people living with rheumatic, musculoskeletal and autoinflammatory diseases. ENCA is the ‘The parent’s organisation subcommittee’ of the Paediatric Rheumatology European Society (PReS), and we represent patients, parents and patient organisations, and we represent patients, parents and patient organisations.
What are ENCA's aims?
ENCA is the voice of children, young people and families with paediatric rheumatic conditions. We represent their views to clinicians, researchers, companies and the public. We share the vision of PReS:
“Dedicated to advance the care and improve the health and wellbeing of children and young people with rheumatic conditions.”
Foster excellence in clinical care, training and education, research and leadership amongst healthcare professionals and researchers worldwide, in partnership with children, young people, their families and patient/parent organisations.
Promote the implementation of advances in clinical, basic and translational research to help children and young people with RMDs to reach their full potential.
Advocate for the holistic needs of children, young people and their families at the individual, family and societal level, through networking and collaboration with national and international organisations with an interest in paediatric rheumatology.
Provide the patient and family perspective of living with a rheumatic disease, and by providing support and information about living well with a paediatric RMD. This includes support for daily living, in education, in transition and in work.
What is the history of ENCA?
ENCA was formerly known as the European Network for Children with Arthritis and Autoinflammatory conditions and was founded in 2002. Since then, our work has grown and we now work with patient organisations all over the world. In 2023 we officially renamed to be ENCA, dropping the use of the words represented by the acronym and updating our logo to better reflect the communities we serve globally whilst retaining our history.
How is ENCA run?
ENCA is run by the ENCA Board, who have responsibility for the strategic aims of the organisation. Board Members are always linked to one of our Member Organisations, helping ensure support, collaboration and mutual development opportunities.
There are also many opportunities for ENCA Members to join our work through projects and working groups. Contact us to find out more.