Members
ENCA is a membership-based organisation. Eligible patient organisations from anywhere in the world can apply to join.
ENCA Member organisations
JAR | Juvenile Arthritis Research
Conditions: Juvenile Idiopathic Arthritis (JIA)
Country: UK (English)
Website: www.jarproject.org
Email: kipo@jarproject.org
Facebook: /jarproject
Twitter: @jarproject
Instagram: @_jarproject
JVN | Jeugdreuma Vereniging Nederland
Conditions: Juvenile Idiopathic Arthritis (JIA)
Country: The Netherlands (Dutch & English)
Website: https://jeugdreumavereniging.nl
Email: info@jeugdreumavereniging.nl
Facebook: /jeugdreumavereniging
Instagram: @jeugdreumavereniging
Kourir
Conditions: Juvenile Idiopathic Arthritis (JIA) and associated diseases
Country: France (French)
Website: www.kourir.org
Email: contact@kourir.org
Facebook: /kourir.france
Twitter: @kourirfrance
Instagram: @association_kourir/
Parents' and Caregivers' Association of Children with Chronic Rheumatic Diseases
Conditions: Paediatric Rheumatic diseases
Country: Greece (Greek)
Website: www.sygopaa.gr
Email: childwithrheumatism@gmail.com
Facebook: /paa.gr
Instagram: @childwithrheumatism
Zoe's Angels
Conditions: JIA and Auto inflammatory diseases
Country: Australia (English)
Website: www.zoesangels.org
Email: zoesangels23@gmail.com
Facebook: /JIAzoesangels
AKSA | Arthritis Kids South Africa
Conditions: Juvenile Idiopathic Arthritis (JIA)
Country: South Africa (English)
Website: https://arthritiskids.co.za/
Email: admin@arthritiskids.co.za
Facebook: /arthritiskidssouthafrica
Twitter: @ArthritisKidsSA
Instagram: @arthritiskidssa
AMRI | Associazione per le Malattie Reumatiche Infantili APS
Conditions: Paediatric rheumatic and autoinflammatory rare diseases
Country: Italy (Italian and English)
Website: www.amri.it
Email: assamri@gmail.com
Facebook: /amriaps
Twitter: @amriaps
Instagram: @amri_aps
CYLPER | Cyprus League of People with Reumatism
Conditions: Rheumatic diseases
Country: Cyprus (Greek and English)
Website: www.rheumatism.org.cy
Email: cyplar@cytanet.com.cy
Facebook: /cyplar
CCAA | Children's Chronic Arthritis Association
Conditions: Juvenile Idiopathic Arthritis
Country: England (English)
Website: www.ccaa.org.uk
Email: info@ccaa.org.uk
Facebook: /CCAAorguk
Twitter: @CCAA_org
Instagram: @ccaa_kids_arthritis
Deutsche Rheuma-Liga
Conditions: All rheumatic diseases.
Country: Germany (German)
Website: www.rheuma-liga.de
Email:
Facebook: /DeutscheRheumaLiga
Twitter: @DtRheumaLiga
Instagram: @deutsche_rheuma_liga
Društvo za pomoč otrokom z imunskimi boleznimi
Conditions: Immune mediated diseases .
Country: Slovenia (Slovenian)
Website: www.imuno.si
Email: drustvo.imuno@gmail.com
HELAR | Hellenic League Against Rheumatism
Conditions: Rheumatic and musculoskeletal diseases
Country: Greece (Greek and English)
Website: www.arthritis.org.gr
Email: info@arthritis.org.gr
Facebook: /eleanarheumatism
Twitter: @rheumatism78
Instagram: @eleana_rheumatism/
iCAN | Irish Children's Arthritis Network
Conditions: All rheumatological diseases
Country: Ireland (English)
Website: https://icanireland.ie/
Email: icanireland@gmail.com
Facebook: /icanireland
Instagram: @icanireland
INBAR
Conditions: All rheumatic diseases
Country: Israel (Hebrew and English)
Website: www.inbar.org.il
Email: office@inbar.org.il
JAFA | Juvenile Arthritis Foundation Australia
Conditions: JIA and related childhood rheumatic diseases
Country: Australia (English)
Website: www.jafa.org.au
Email: info@jafa.org.au
Facebook: /jafa4kidsarthritis
Twitter: @jafaforkids
Instagram: @jafa4kidsarthritis
Stichting KAISZ
Conditions: Autoinflammatory diseases
Country: The Netherlands (Dutch, with resources in Dutch, English, Turkish and Arabic)
Website: www.kaisz.nl
Email: info@kaisz.nl
Facebook: /StichtingKAISZ
Instagram: @stichting.kaisz
LIRE | Spanish League Against Rheumatic and Musculoeskeletal
Conditions: All rheumatic and musculoeskeletal conditions
Country: Spain (Spanish and English)
Website: www.lire.es
Email: lire@lire.es
Facebook: /LIGAREUMA
Twitter: @ligareuma
Instagram: @ligareuma
Systemic JIA Foundation
Conditions: Systemic JIA, Still's Disease, Macrophage Activation Syndrome
Country: Headquartered in USA but patients from all across the world (English)
Website: www.systemicjia.org
Email: contact@systemicjia.org
Facebook: /sjiafoundation
Twitter: @sjiafoundation
Lupus UK
Conditions: Lupus and associated autoimmune conditions
Country: UK (English, some printed documents also in Welsh)
Website: www.lupusuk.org.uk
Email: headoffice@lupusuk.org.uk
Facebook: /lupusuk
Twitter: @lupusuk
Instagram: @lupusuk
ORKA | Ouders van Reumakinderen en -Adolescenten vzw
Conditions: Paediatric Rheumatic diseases
Country: Belgium (Dutch)
Website: www.kinderreuma.org
Email: orka@kinderreuma.org
Facebook: /Team.O.R.K.A
Instagram: @kinderreuma_org
Rheumalis
Conditions: Children and young adults with rheumatic and auto immune related diseases.
Country: Austria
Website: https://rheumalis.org
Email: office@rheumalis.org
Facebook: /rheumalis
Reumatología Pediátrica Uruguay
Conditions: Childhood rheumatic diseases.
Country: Uruguay
Email: reumatologiapediatricauruguay@gmail.com
Facebook: /Reumatologiapediatricauruguay
SNAC | Scottish Network for Arthritis in Children
Conditions: Juvenile Idiopathic Arthritis (JIA)
Country: Scotland (English)
Website: www.snac.uk.com
Email: secretary@snac.uk.com
Facebook: /SNACPage
Twitter: @SNAC_JIA
Instagram: @snac_jia
The Swedish Rheumatism Association
Conditions: All rheumatic conditions
Country: Sweden (Swedish and English)
Website: www.reumatiker.se
Email: info@reumatiker.se
Facebook: /Reumatikerforbundet
Instagram: @reumatikerforbundet
UNGA REUMATIKER | Swedish National Organization for Young Rheumatics
Conditions: Rheumatic conditions (in people aged 0 - 30)
Country: Sweden (Swedish)
Website: https://ungareumatiker.se/
Email: kansliet@ungareumatiker.se
Facebook: /UngaReumatiker
VA | Versus Arthritis
Conditions: Arthritis and related MSK conditions
Country: UK (English)
Website: www.versusarthritis.org
Email: ypfsuk@versusarthritis.org
Facebook: /VersusArthritis
Twitter: @VersusArthritis
Instagram: @VersusArthritis
Youth-R-Well
Conditions: Rheumatic conditions in young people aged 16 to 30
Country: Netherlands
Website: www.youth-r-well.com
Email: info@youth-r-well.com
Facebook: /youthRwell
How to join ENCA
Fill in this form, including submitting a formal letter from your patient organisation. The ENCA Board will then review your application.
Who can join ENCA?
As a global network, ENCA Members are organisations who wish to collaborate to achieve the goals of ENCA and to provide support and advocacy to patients and families with paediatric rheumatic and musculoskeletal diseases or autoinflammatory diseases (RMDs).
Patient organisations, or informal networks and groups, who are primarily focused on paediatric RMDs may apply to be ENCA Member Organisations.
ENCA Member Organisations will:
Share the values and goals of ENCA.
Support and promote the work of ENCA.
Take part in opportunities offered to them by ENCA wherever possible, including representing the patient voice at regional, national and international conferences with the support and endorsement of the ENCA Board.
Attend the annual Congress wherever possible including attending and participating in the annual ENCA round-table discussion at the congress.
Share best practice, ideas and resources with ENCA, to support other Members.
Publish a link to the ENCA website on their own website.