Members

ENCA is a membership-based organisation. Eligible patient organisations from anywhere in the world can apply to join.

ENCA Member organisations

Our current Board Members are from:

Juvenile Arthritis Research logo.

JAR | Juvenile Arthritis Research

Conditions: Juvenile Idiopathic Arthritis (JIA)

Country: UK (English)

Website: www.jarproject.org 

Email: kipo@jarproject.org 

Facebook: /jarproject

Twitter: @jarproject

Instagram: @_jarproject

JVN Logo.

JVN | Jeugdreuma Vereniging Nederland 

Conditions: Juvenile Idiopathic Arthritis (JIA)

Country: The Netherlands (Dutch & English)

Website: https://jeugdreumavereniging.nl

Email: info@jeugdreumavereniging.nl 

Facebook: /jeugdreumavereniging

Instagram: @jeugdreumavereniging

KOURIR Logo.

Kourir

Conditions: Juvenile Idiopathic Arthritis (JIA) and associated diseases

Country: France (French)

Website: www.kourir.org  

Email: contact@kourir.org 

Facebook: /kourir.france

Twitter: @kourirfrance 

Instagram: @association_kourir/ 

Parents' and Caregivers' Association of Children with Chronic Rheumatic Diseases logo.

Parents' and Caregivers' Association of Children with Chronic Rheumatic Diseases 

Conditions: Paediatric Rheumatic diseases

Country: Greece (Greek)

Website: www.sygopaa.gr 

Email: childwithrheumatism@gmail.com 

Facebook: /paa.gr

Instagram: @childwithrheumatism

Zoe's Angels logo.

Zoe's Angels

Conditions: JIA and Auto inflammatory diseases 

Country: Australia (English)

Website: www.zoesangels.org

Email: zoesangels23@gmail.com

Facebook: /JIAzoesangels 


Our ENCA Members are:

Arthritis Kids South Africa logo.

AKSA | Arthritis Kids South Africa

Conditions: Juvenile Idiopathic Arthritis (JIA)

Country: South Africa (English)

Website: https://arthritiskids.co.za/ 

Email: admin@arthritiskids.co.za 

Facebook: /arthritiskidssouthafrica 

Twitter: @ArthritisKidsSA 

Instagram: @arthritiskidssa

AMRI Logo.

AMRI | Associazione per le Malattie Reumatiche Infantili APS 

Conditions: Paediatric rheumatic and autoinflammatory rare diseases 

Country: Italy (Italian and English)

Website: www.amri.it 

Email: assamri@gmail.com 

Facebook: /amriaps

Twitter: @amriaps 

Instagram: @amri_aps

CYLPER logo.

CYLPER | Cyprus League of People with Reumatism 

Conditions: Rheumatic diseases

Country: Cyprus (Greek and English)

Website: www.rheumatism.org.cy

Email: cyplar@cytanet.com.cy  

Facebook: /cyplar

CCAA logo.

CCAA | Children's Chronic Arthritis Association

Conditions: Juvenile Idiopathic Arthritis 

Country: England (English)

Website: www.ccaa.org.uk 

Email: info@ccaa.org.uk

Facebook: /CCAAorguk

Twitter: @CCAA_org

Instagram: @ccaa_kids_arthritis

Deutsche Rheuma Liga Logo.

Deutsche Rheuma-Liga 

Conditions: All rheumatic diseases.

Country: Germany (German)

Website: www.rheuma-liga.de 

Email:  

Facebook: /DeutscheRheumaLiga

Twitter: @DtRheumaLiga

Instagram: @deutsche_rheuma_liga 

Društvo za pomoč otrokom z imunskimi boleznimi Logo.

Društvo za pomoč otrokom z imunskimi boleznimi 

Conditions: Immune mediated diseases .

Country: Slovenia (Slovenian)

Website: www.imuno.si 

Email: drustvo.imuno@gmail.com

HELAR logo.

HELAR | Hellenic League Against Rheumatism

Conditions: Rheumatic and musculoskeletal diseases

Country: Greece (Greek and English)

Website: www.arthritis.org.gr

Email: info@arthritis.org.gr

Facebook: /eleanarheumatism

Twitter: @rheumatism78 

Instagram: @eleana_rheumatism/ 

iCAN | Irish Children's Arthritis Network 

Conditions: All rheumatological diseases

Country: Ireland (English)

Website: https://icanireland.ie/

Email: icanireland@gmail.com

Facebook: /icanireland  

Instagram: @icanireland

JAFA logo.

JAFA | Juvenile Arthritis Foundation Australia

Conditions: JIA and related childhood rheumatic diseases 

Country: Australia (English)

Website: www.jafa.org.au

Email: info@jafa.org.au  

Facebook: /jafa4kidsarthritis 

Twitter: @jafaforkids

Instagram: @jafa4kidsarthritis 

KAISZ Logo.

Stichting KAISZ 

Conditions: Autoinflammatory diseases

Country: The Netherlands (Dutch, with resources in Dutch, English, Turkish and Arabic)

Website: www.kaisz.nl 

Email: info@kaisz.nl 

Facebook: /StichtingKAISZ 

Instagram: @stichting.kaisz 

LIRE Logo.

LIRE | Spanish League Against Rheumatic and Musculoeskeletal 

Conditions: All rheumatic and musculoeskeletal conditions 

Country: Spain (Spanish and English)

Website: www.lire.es 

Email: lire@lire.es  

Facebook: /LIGAREUMA 

Twitter: @ligareuma

Instagram: @ligareuma

Systemic JIA Foundation logo

Systemic JIA Foundation

Conditions: Systemic JIA, Still's Disease, Macrophage Activation Syndrome  

Country: Headquartered in USA but patients from all across the world (English)

Website: www.systemicjia.org 

Email: contact@systemicjia.org 

Facebook: /sjiafoundation

Twitter: @sjiafoundation

Lupus UK Logo.

Lupus UK

Conditions: Lupus and associated autoimmune conditions 

Country: UK (English, some printed documents also in Welsh)

Website: www.lupusuk.org.uk 

Email: headoffice@lupusuk.org.uk 

Facebook: /lupusuk 

Twitter: @lupusuk

Instagram: @lupusuk

ORKA Logo.

ORKA | Ouders van Reumakinderen en -Adolescenten vzw 

Conditions: Paediatric Rheumatic diseases

Country: Belgium (Dutch)

Website: www.kinderreuma.org  

Email: orka@kinderreuma.org  

Facebook: /Team.O.R.K.A  

Instagram: @kinderreuma_org

Rheumalis logo

Rheumalis

Conditions: Children and young adults with rheumatic and auto immune related diseases. 

Country: Austria

Website: https://rheumalis.org 

Email: office@rheumalis.org 

Facebook: /rheumalis 

Reumatología Pediátrica Uruguay logo

Reumatología Pediátrica Uruguay 

Conditions: Childhood rheumatic diseases

Country: Uruguay

Email: reumatologiapediatricauruguay@gmail.com 

Facebook: /Reumatologiapediatricauruguay

SNAC logo.

SNAC | Scottish Network for Arthritis in Children 

Conditions: Juvenile Idiopathic Arthritis (JIA)

Country: Scotland (English)

Website: www.snac.uk.com  

Email: secretary@snac.uk.com 

Facebook: /SNACPage 

Twitter: @SNAC_JIA

Instagram: @snac_jia 

Versus Arthritis logo.

VA | Versus Arthritis

Conditions: Arthritis and related MSK conditions 

Country: UK (English)

Website: www.versusarthritis.org

Email: ypfsuk@versusarthritis.org 

Facebook: /VersusArthritis

Twitter: @VersusArthritis

Instagram: @VersusArthritis 

Youth-R-Well logo

Youth-R-Well

Conditions: Rheumatic conditions in young people aged 16 to 30

Country: Netherlands

Website: www.youth-r-well.com 

Email: info@youth-r-well.com 

Facebook: /youthRwell

How to join ENCA

Fill in this form, including submitting a formal letter from your patient organisation. The ENCA Board will then review your application.

Who can join ENCA?

As a global network, ENCA Members are organisations who wish to collaborate to achieve the goals of ENCA and to provide support and advocacy to patients and families with paediatric rheumatic and musculoskeletal diseases or autoinflammatory diseases (RMDs). 

Patient organisations, or informal networks and groups, who are primarily focused on paediatric RMDs may apply to be ENCA Member Organisations. 

ENCA Member Organisations will: